Disability Resources at MNHS

Timeline

Understanding of disability and who identifies as disabled have changed throughout history.  The following timeline is meant as a broad overview of some of the dominant themes and attitudes at different times, and cannot reflect all viewpoints or nuances.  

  • 1800's - 1850's 
    • During the early 1800s, care for the disabled was dependent mostly on family members or private charitable organizations. 
    • Starting in 1841 with P.T. Barnum's American Museum, persons with visible disabilities might also be used as "curiosities" to entertain the public in traveling carnivals and circuses.  It may also have given some persons a place where they were able to work, live, and form their own society with those who shared key parts of their identity.  For more on this topic, see the Barnum Museum Collections online.  
    • Some regarded persons with disabilities as morally or religiously flawed, and something to be "fixed" through moral rectitude and religious observances.  Epilepsy, in particular, was seen and described as an issue of moral failure, not a natural condition of the body some have. 
    • Throughout this era, there is a rising view of some disabilities as objects of pity and appropriate subjects for charity work, though this view varied widely by class and location. 
    • Rural settings were believed to be beneficial for some types of disability, especially mental disability or illness, so reformer Dorothea Dix asked Congress in 1848 to set aside 5 million acres for institutions to serve the mentally ill and epileptic in rural colonies.  A later version of the bill passed Congress in 1854, but was vetoed by President Franklin Pierce.
  • 1850's - 1900's 
    • The era of "out of sight, out of mind" led to the growth of state funded institutions to care for the mentally and physically disabled considered unable or unwilling to function in societally accepted manners. 
    • The prevalence of the "charity" and "moral" models of disability lead to many private and public institutions and organizations with their own theories on "solving the problem" of disability or aiding the disabled. Some, such as the Minnesota schools for the blind and deaf, offer minimal educational and vocational training, while others are custodial only.  See the “State Hospitals” and "State Schools" tabs for more information about institutions in Minnesota.
    • Liberal commitment laws lead to overcrowding, deteriorating conditions, and neglect in many institutions, while societal stigmas attached to "abnormal" minds or bodies leave persons trapped in the system.  Reforms toward the end of this era lead to attempts to create "isolated communities" within the institutions through the Kirkbride cottage system. 
    • Many communities passed "Ugly Laws" forbidding the "diseased, maimed, mutilated, or in any way deformed" from walking the streets, on penalty of a jail sentence. (The last U.S. "Ugly Law" was repealed by Chicago, Illinois, in 1974).
  • 1920's - 1940's 
    • The 1920s began with the growing popularization of a debunked pseudoscientific theory called "Eugenics".  Eugenics started in the late 1800s in England, and soon spread to other countries, using a misapplication of the theories of Charles Darwin and Gregor Mendel to support the idea of "racial improvement" through selective breeding toward a "perfect human being".  Toward this end, it was judged that "idiots, imbeciles, epileptics, the feebleminded, and insane" should not be allowed to have children. 
    • Indiana passed the first forced sterilization law in 1907.  Minnesota followed with its own law in 1925.  Persons with such conditions who were to be allowed back to their communities underwent involuntary or coerced consent sterilization (predominantly applied to women).  See the Library Eugenics in Minnesota Research Guide for more on this topic.
  • 1940's - 1970's -
    • A series of articles in national and local publications lead to outrage over conditions in institutions serving those with intellectual, physical, or mental disabilities or mental health issues.  In Minnesota, major reform is led by Governor Luther Youngdahl and several private organizations. 
    • The Disability Rights Movement is founded in the late 1950s, with protests often organized in conjunction with the Civil Rights Movement.  The exclusion of disabled Americans as a protected class in the Civil Rights Act of 1964, however, leads separation into an independent movement with many facets, including housing reform, educational access, deinstitutionalization, and accessible or barrier-free architecture and transportation. 
    • For mental health care, the passing of the 1963 Community Mental Health Act began to provide federal money to individual counties for community care. This leads to the eventual closing of many state institutions and an emphasis on encouraging community living for adults with developmental or intellectual disabilities previously institutionalized.  Federal money is also provided for public educational needs, leading to the Title I and Special Education programs. 
    • The National Council on Disability is established as an advisory board for the federal Department of Education and the United Nations General Assembly issues a Declaration on the Rights of Disabled Persons (1975).
  • 1980's - 2000's -
    • By the 1980s and 1990s, educational best practices advocated for the inclusion of all children in the same classroom ("mainstreaming") to the extent possible with adaptations for disabilities.  Charter schools provide learning environments adapted for those with certain disabilities, such as the Metro Deaf School-Minnesota North Star Academy.
    • The passage of the Americans with Disabilities Act established those with disabilities as a protected class, though some courts and businesses used a very narrow definition of "disability", leading to the law's amendment in 2008 to overturn several court rulings. 
    • Several landmark court cases, including the Welsch case and the Jensen Lawsuit change the way institutions for those with certain disabilities function and create support for community and home based care.
    • The accessible architecture movement led to the principle of universal design, which holds that the initial design should be as inclusive as possible, and applied it to technology and other aspects of life beyond physical barriers.  Several federal laws began to advocate for accessible adaptations in technology and the World Wide Web, including screen readers, readable fonts, and adaptive devices for computer control.  
  • 2000's - Today
    • Disabilities are acknowledged as a natural part of the human experience, and person-first and identity-first language is becoming standard.  Many negative stereotypes and harmful models of disability persist, however.
    • Multiple states, including Minnesota, acknowledge and apologize for past discrimination against the disabled community, most notably forced institutionalization and sterilization. 
    • Societal concepts of "normal" begin to change in some areas, especially as COVID, wars, and other societal changes expand the numbers of Americans with disabilities or mental health issues. 
    • Many police units begin to add training or advisors after several incidents involving the deaths of those in mental health crises during confrontations with police.  
    • Advocacy for and concepts of disability, equality, and accessibility continue to evolve.

Core Concepts

Views on disabilities have changed greatly over time in Minnesota.  Please note that the library has resources pertaining to many of these viewpoints and time periods. 

Models of Disability and Historical Movements -  These models are a few of the ways in which society and culture has categorized disabled persons and society's response to them through time.  There are many models, or frameworks through which disability has been defined and regarded, but some common ones encountered in the library's collections are noted here.

  • Moral or Religious Model of Disability - prevalent throughout different periods of history, this model assumes that disability is evidence of a moral failing on the part of an individual or family and may be the punishment of a higher power.  Epilepsy, in particular, was seen and described as an issue of moral failure, not a neurological condition.  Suggested solutions have included prayer, proper deportment and conformity to particular beliefs or behavioral models.  This is one model used to push for the building and maintaining of separate institutions for those with mental and physical disabilities or the mentally ill.  Families may have shown shame or fear of identification with the disabled or mentally ill member, leading to further isolation or long periods of institutionalization.  The most prevalent example of this concept is seen in religious writings and opinion pieces published in the newspapers.  See the State Institution Records tab in this guide for suggested collections.  

 

  • Charity Model of Disability - prevalent throughout the 1800s and 1900s, this model states that those who are disabled and unable to visibly contribute to society are "victims" who should be cared for and pitied.  The emphasis is placed on "cures" to make the disabled as "normal" as possible.  Language common to this model includes the terminology that someone "suffers from" or is "inflicted with" a disability instead of regarding the disability as a normal variation of human life.  This is one model used to push for the building of institutions for the care of the mentally and/or physically disabled and mentally ill.  For examples of this model, see the State Institution Records Tab and the Legal Reform Tab, especially resources under the 1948 Youngdahl State Hospital Reforms.

 

  • Medical Model of Disability - this model categorizes persons with disabilities by the medical issues or abnormalities that they have, instead of focusing on the person and their self-identity, and emphasizes the "fixing, treatment, or cure" of the disability.  It places the burden of adaptation and inclusion on the person with the disability, and often ignores societal influences on disability.  It is most prevalent in the records of a medical nature and state institutions, especially the state hospitals.  See the library's State Hospital Historical Patient Records Research Guide for early patient medical records from the state hospitals for examples written in this model.

 

  • Social Model of Disability - popularized by some in the disabled community in about 1975, this view states that the larger majority society has labelled or identified individuals as "abnormal", even when the person does not view themselves this way.  Therefore, it is the larger society that has imposed these labels and created systems and spaces fitting only those deemed "normal".  This model states that society has the responsibility to alter this attitude to include all persons of all types through thoughtful accessibility, accommodations, and anti-discriminatory actions. It is also called the "Minority Group Model".   See the Advocacy and Organizations and Legal Reform Tabs for collections containing this model.

 

  • Eugenics Movement -  Eugenics, a pseudoscientific theory since debunked, started in the late 1800s in England, and soon spread to other countries, using a misapplication of the theories of Charles Darwin to support the idea of human improvement through selective breeding toward a "perfect human being".  The theory was first popularized by Francis Galton, a cousin of Charles Darwin, who coined the term "eugenics". Better-breeding was encouraged in a number of ways, including sterilization laws passed by 32 US states between 1907 and 1932.   Minnesota passed a forced sterilization law in 1925. These laws required that various groups of people, especially those judged to be "idiots, imbeciles, epileptics, the feebleminded, and insane," be forcibly sterilized in order to stop them from having children. Women were predominately targeted by these laws, but men could be too. Charles Dight led the eugenics movements in Minnesota. In 1975, Minnesota repealed its sterilization law, and a formal apology was issued by the state in 2010.  See the library's Eugenics in Minnesota Research Guide for more on this topic.

 

  • Disability Rights Movement - Activism has a long history in the disabled community dating back to the 1800s.   The groups found heightened popularity, visibility, and success as many more were formed in the 1900s and 2000s, however.  While exact goals vary widely by group, the central idea of the Disability Rights Movement has been equality - of treatment, access, and opportunity - and the recognition of disability as one aspect of a whole individual that may influence, but not necessarily solely define that person. The push for legal and legislative reform, including the Americans with Disabilities Act, have been very visible aspects of this movement.   Examples of advocacy as part of this movement may be seen in some of the collections highlighted on the Advocacy and Organizations tabs, as well as the Universal Design and Legal Subjects and Reform tabs.

 

  • Sick Role of Disability - societal expectations of the ill first identified by American sociologist Talcott Parsons in 1951.  The Sick Role of Disability states that American society often displays certain attitude and behavioral expectations for those who are ill - whether or not the illness is chronic, treatable, or part of a disability.  Those who are ill are expected to seek a cure or aid and be compliant with the instructions of caregivers and health professionals.  In turn, they are excused from certain normal societal obligations, such as attendance at school or work.  These steps are expected to fix the problem and allow the ill person to resume what society has defined as "normal" activities.  Those who do not conform to this expectation, whether by choice or circumstance, may be ostracized, criticized, or face societal sanction of some fashion.  This concept may be encountered throughout the collections, being especially present some of the views of early state hospitals and their custodial role for patients.

Sources: For the definitions of the models of disability, the following websites were used: 

Disabled World: Models of Disability.  Accessed at: https://www.disabled-world.com/definitions/disability-models.php

Conceptualizing disability: Three models of disability.  American Psychological Association.  Accessed at: https://www.apa.org/ed/precollege/psychology-teacher-network/introductory-psychology/disability-models

7 Models of Disability and Why They Matter, by Adam Safar.  Clym.  Accessed at: https://www.clym.io/blog/7-models-of-disability-and-why-they-matter

For background on key movements, the following websites were used:

Disability History: The Disability Rights Movement. National Park Service. Accessed at: https://www.nps.gov/articles/disabilityhistoryrightsmovement.htm

A Brief History of the Disability Rights Movement.  Anti-defamation League.  Accessed at: https://www.adl.org/resources/backgrounder/brief-history-disability-rights-movement

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